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OhTWIST

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Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed) https://ohtwist.com

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🌈🌤️ Lethabo #ocsky ! He/they • Autistic • H-EDS #disabledartist #eds

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My Angry Joints / Connective Tissue Disorder #eds #rheumatoidarthritis #mctd #lupus

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Yes, Chinese medicine can help with this. #BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema 💕 #Wellness

Lipedema: What It Is, What You Can Do About ItDo you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…buff.ly
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When it's so hot out your insides need special care. #BlogPost #GutHealth #Nutrition #Diet #Microbiome #EatWellLiveWell #HolisticHealth #SelfCare 💕 #Wellness

Hot Weather and Gut Health? Yes, Please!If you’ve noticed that your digestive system reacts to hot weather you are not imagining things.  It’s true. …buff.ly
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GOOD NEWS! A personalized mRNA vaccine, known as mRNA-4157, has shown promise in keeping melanoma, a deadly skin cancer, from returning. FIVE years later, NEARLY 70% of people in the vaccine group are CANCER-FREE. The vaccine also cut a person’s risk of the cancer metastasizing by NEARLY 60%.

A personalized vaccine for melanoma cut the risk of cancer returning after five yearsIf the vaccine is effective in a late-stage trial, it would be “paradigm-shifting,” one expert said.www.nbcnews.com
27313,5 тыс.4,5 тыс.
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John Ferman, who founded of @cppedsa.bsky.social in 2011, passed away November 2025 EDS patient and filmmaker @karinasturm.bsky.social made this documentary short to honor John’s legacy of advocacy (in honor of his first wife, who passed away due to #EDS complications): youtu.be/vLar9uhx0NE?...

Where People Understand (Full Film, HD)YouTube video by Karina Sturmyoutu.be
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Where to begin when you are complicated? #BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #Strategies 💕 #Wellness

How Chinese Medicine Treats hEDS (Where to Begin)Acupuncture and other modalities of Chinese medicine can be an excellent resource for people with complex disorders, EDS and the c…buff.ly
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What is between you and your ideal state of health? #ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

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May EDS myth-busting with Chronic Pain Partners - all may not be as it appears to the untrained eye: www.chronicpainpartners.com/beyond-the-m... #EDS #hEDS #HSD #Hypermobility #zebras #MedX #MedSky #NEISvoid

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Poor Halsey. MCAS is no fun and she's got other EDS and POTS too (not to mention an autoimmune condition). That's a lot. #MCAS #ChronicIllness #ChronicPain #EDS #hEDS #HolisticHealth #SelfCare 💕 #Wellness

Halsey Diagnosed with Mast Cell Activation Syndrome and a Host of Other Ailments. What is MCAS? - SnackSafely.comSinger hospitalized for anaphylaxis numerous times.buff.ly
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Recently I was diagnosed with Hypermobile EDS. I also struggle with acute tendonitis in my drawing hand and muscle pains. Any other artists out there have any tips and tricks on how to make the creative experience more comfortable and less hurty? 😅 #eds #hypermobileeds

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Just found out that May is #EDSAwarenessMonth! I have #hEDS & was diagnosed in my late 20s, & have been fighting for my own advocacy. I tell my stories so someone else in similar shoes feels seen when they read them. That's how I started looking for answers. #EDS is the zebra with many stripes.

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ART FUNDRAISER FOR MEDICAL RESEARCH Acquire a painting that speaks to you and fund science. 50% of all art sales are donated to The Ehlers-Danlos Society, advancing research into Ehlers-Danlos Syndromes. I live with hEDS. Access to research changed my life. #eds #abstractpainting #contemporaryart

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