🌈🌤️ Lethabo #ocsky ! He/they • Autistic • H-EDS #disabledartist #eds
Профиль
OhTWIST
Профиль VivelyOh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed) https://ohtwist.com
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My Angry Joints / Connective Tissue Disorder #eds #rheumatoidarthritis #mctd #lupus
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Source: eds.hannahlouise on Insta Chronic Illness isn't easy #chronicillness #chronicillnessmemes #eds
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Yes, Chinese medicine can help with this. #BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema 💕 #Wellness
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Introducing Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS with Dr. Campesi buff.ly/WKS62OG #EDS #HSD #zebras #Scoliosis #Physio #MedSky #MedEd
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When it's so hot out your insides need special care. #BlogPost #GutHealth #Nutrition #Diet #Microbiome #EatWellLiveWell #HolisticHealth #SelfCare 💕 #Wellness
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GOOD NEWS! A personalized mRNA vaccine, known as mRNA-4157, has shown promise in keeping melanoma, a deadly skin cancer, from returning. FIVE years later, NEARLY 70% of people in the vaccine group are CANCER-FREE. The vaccine also cut a person’s risk of the cancer metastasizing by NEARLY 60%.
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Measuring the Unmeasured - What Two New Studies Say About the Head, Neck, and hEDS buff.ly/niK7jRw #EDS #hEDS #Zebras #CCI #Medicine #MedSky
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John Ferman, who founded of @cppedsa.bsky.social in 2011, passed away November 2025 EDS patient and filmmaker @karinasturm.bsky.social made this documentary short to honor John’s legacy of advocacy (in honor of his first wife, who passed away due to #EDS complications): youtu.be/vLar9uhx0NE?...
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We need your support to keep our media team going thank you! Can you help? www.chronicpainpartners.com/chronic-pain... #EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support
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Tools and assistive devices to help people with disabilities that affect their hands! #Disability #Arthritis #EDS
WhiskersAndThingsSo it turns out I forgot to include the video link! 😆
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Where to begin when you are complicated? #BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #Strategies 💕 #Wellness
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What is between you and your ideal state of health? #ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness
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May EDS myth-busting with Chronic Pain Partners - all may not be as it appears to the untrained eye: www.chronicpainpartners.com/beyond-the-m... #EDS #hEDS #HSD #Hypermobility #zebras #MedX #MedSky #NEISvoid
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Poor Halsey. MCAS is no fun and she's got other EDS and POTS too (not to mention an autoimmune condition). That's a lot. #MCAS #ChronicIllness #ChronicPain #EDS #hEDS #HolisticHealth #SelfCare 💕 #Wellness
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Recently I was diagnosed with Hypermobile EDS. I also struggle with acute tendonitis in my drawing hand and muscle pains. Any other artists out there have any tips and tricks on how to make the creative experience more comfortable and less hurty? 😅 #eds #hypermobileeds
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Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026) www.chronicpainpartners.com/remembering-... #EDS #EhlersDanlosSyndrome #hEDS #HSD #Zebras #Medicine #Doctors #NEISvoid
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Just found out that May is #EDSAwarenessMonth! I have #hEDS & was diagnosed in my late 20s, & have been fighting for my own advocacy. I tell my stories so someone else in similar shoes feels seen when they read them. That's how I started looking for answers. #EDS is the zebra with many stripes.
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ART FUNDRAISER FOR MEDICAL RESEARCH Acquire a painting that speaks to you and fund science. 50% of all art sales are donated to The Ehlers-Danlos Society, advancing research into Ehlers-Danlos Syndromes. I live with hEDS. Access to research changed my life. #eds #abstractpainting #contemporaryart