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It was an honor to know and work with John. RIP dear friend. You've blessed - and continue to bless - oodles of people around the world. This is a beautiful tribute by fellow EDSer @karinasturm.bsky.social.

Sorry I've been a bit absent. I'm battling a gnarly health issue while trying to attend summer craft markets with my photography. I'm struggling with both. But hopefully not too much longer on the first issue. Follow @photograbee.bsky.social for the latter.

Tomorrow! Don't miss! It's normally $14.99 to stream. 👀

Is #hypermobility just a big red herring? I think so in 2021… ohtwist.com/the-hypermob... #EDS #HSD #hEDS #EhlersDanlos #fibromyalgia #fibro #MedEd #FOAMed #MedTwitter #nurses #doctors #pain #rheumatology #genetics #NEISvoid

The Hypermobile Red Herring - Oh TWISTHow hypermobility can be a red herring, leading doctors to miss other symptoms in some, and dismiss the same symptoms in othersohtwist.com

Dental Freezing (Numbing) Formula that works great for many patients with CTDs: 1/2 mepiva w/out epi, 1 art w/epi 1:100,000 “art” stands for “articaine”. #EDS #hypermobility #HSD #NEISvoid #Dentists #autistic #Dentistry

We were lucky to have fellow zebra @karinasturm.bsky.social at the helm of our media team the last seven years. She's one to follow, as an emerging filmmaker, journalist and disability advocate. Rock on, friend. We owe you! #EDS

Peeling the Diagnostic Onion - is your doctor falling for too many red herrings and missing your #hypermobility? buff.ly/2QA8nRe #HSD #EDS #hEDS #EhlersDanlos #pain #MedEd #MedTwitter #Fibromyalgia #fibro #zebras #NEISvoid #autistic #ADHD

Rewatch Day 2 of the UVA EDS Symposium from April 10th, 2026 here: www.youtube.com/live/IGtre6u... #EDS #hEDS #HSD #Zebras #MedEd #MedX #NEISvoid

Rewatch Day 1 of the UVA EDS Symposium from April 9th, 2026 here: www.youtube.com/live/NYfexNL... #EDS #hEDS #HSD #Zebras #MedEd #MedX #NEISvoid

Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology October 2025 Griggs, Daylor, Petrucci et al academic.oup.com/immunohorizo... #EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology

Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiologyAbstract. Hypermobile Ehlers–Danlos Syndrome (hEDS) is a poorly understood connective tissue disorder that lacks molecular diagnostic markers. This study aacademic.oup.com

Y'all! This is a great opp to watch for just $3 USD! It's normally $14.99 to stream (they need to recoup costs still). I saw it and it's very moving and powerful. I bawled! TW: Medical gaslighting, death #EDS #HSD #zebras

Resistance to local anesthesia (seen) in people with the Ehlers-Danlos Syndromes presenting for dental surgery 2019 Schubart, Schaefer, Janicki et al buff.ly/2wEJ4co #EDS #hEDS #Hypermobility #HSD #fibro #Fibromyalgia #NEISvoid #MedTwitter #Dentistry #Dentists

Resistance to local anesthesia in people with the Ehlers-Danlos Syndromes presenting for dental surgeryPeople with the Ehlers-Danlos Syndromes (EDS), a group of heritable disorders of connective tissue, often report experiencing dental procedure pain despite local anesthetic (LA) use. Clinicians have…buff.ly

Apologies for my website outage earlier today (Thursday). In other news, I heard they're going to recombine #hEDS and #HSD again. Unsure exactly what we'll call it. Or if it will stay in the #EDS bin. TBD 12/1/26.