An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
"A call from #school, a #son in shock, another #ambulance racing against time. All the old fears returned the ones that ask whether anyone will listen, whether we will once again be asked to prove our reality.": buff.ly/WP3heC3 via @cppedsa.bsky.social #allergies #motherhood #ChronicIllness #parent
The Silence After Survival – EDSAwareness.comThis week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.buff.ly
It was an honor to know and work with John. RIP dear friend. You've blessed - and continue to bless - oodles of people around the world. This is a beautiful tribute by fellow EDSer @karinasturm.bsky.social.
Chronic Pain Partners - EDS AwarenessWhere People Understand - short film by EDSer Karina Sturm in tribute to CPP founder and president John Ferman, d. Nov 11, 2025: youtu.be/vLar9uhx0NE?... #EDS #hEDS #HSD #EDSAwareness #CPP #Zebras #film
The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible buff.ly/zTVAuva #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Disability #Autism #ADHD #AuDHD #Dyslexia #Dysgraphia #Dyscalculia #Dysautonomia #MCAS #Mastocytosis #Fibromyalgia #Spoonies #MedSky #Zebras
I was diagnosed with #EDS 6 years after @cppedsa.bsky.social began The resources John Ferman and others at Chronic Pain Partners/EDS Awareness shared were invaluable, especially in an era before social media made research, clinician and medical care info easier to find Thank you 💜
"We did not have to fight. Not this time. Not in that room. Not with those people... And I… I didn’t know how to stand in a place where #compassion came freely. I felt unsteady, unfamiliar with relief.": buff.ly/emeCUhA via @cppedsa.bsky.social #ChronicPain #PatientCare #healthcare #nurse #doctor
The Silence After Survival – EDSAwareness.comThis week arrived like a storm we already knew by heart,yet somehow… it carried a different kind of wind.buff.lyJohn Ferman, who founded of @cppedsa.bsky.social in 2011, passed away November 2025 EDS patient and filmmaker @karinasturm.bsky.social made this documentary short to honor John’s legacy of advocacy (in honor of his first wife, who passed away due to #EDS complications): youtu.be/vLar9uhx0NE?...
Where People Understand (Full Film, HD)YouTube video by Karina Sturmyoutu.be