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Профиль

A Chronic Voice

Профиль Vively

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://achronicvoice.com/

"What about temperament & neurochemistry? Early #caregivers. #Teachers. #Friendships. #Mentors. Safety nets. Economic conditions. The historical moment into which we were born..The person who opened a door.": buff.ly/1FdmOYh via @psychologytoday.com #independence #gratitude #SelfMade #humanity

The Case Against Self-MadePersonal Perspective: Americans love the idea of a self-made man or woman, but what if there is no such thing?buff.ly
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"But over time, I noticed something shift [by #SettingBoundaries with #ChronicIllness ]. The people who cared about me didn’t leave. They adapted. Some even thanked me for being clearer, because it helped them understand how to #ShowUp better.": buff.ly/vOnyYZS by @thethrivingspoonie.com #SelfCare

The Truth About Setting Boundaries with Chronic Illness (and Why It Feels So Hard at First)Setting boundaries with chronic illness isn’t easy—especially when you’ve spent years trying to keep the peace or avoid being seen as “difficult.” But the truth is, boundaries aren’t barriers;…buff.ly
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"Many people with #ChronicPain & #ChronicIllness keep #habit, mood & pain #trackers either by hand or using a digital #app. This can help us to pick out patterns & triggers that we may have otherwise missed whilst on cruise control thru life.": buff.ly/SkEqQUV #journaling

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“When we are born, we have the #cognition of #shame. This is where it differs from #guilt, as guilt is a secondary #emotion, not a primary..Shame is meant to protect us, to keep us safe.”: buff.ly/t1i5KEd by @jenniferkindera.bsky.social #MentalHealth #trauma #traumatic #emotions #struggle

Trauma & Shame: The Struggle is RealMy clients find me because they are looking for help with their childhood trauma, and many don’t realized the depth of the toxic, pervasive shame that goes hand in hand with that. While I’ve written…buff.ly
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"U can't make a #chromaticity diagram for a #bird in a flat image. You’d have to make a chromaticity volume. A #screen made for #humans can’t even approximate the #vision of birds. To them it would look like black & white with 1 added #color.": buff.ly/hr3SO0H via @moultano.bsky.social #birds

Where to Find the Colors Your Screen Can’t Show YouAn atlas of the vibrance of the real worldbuff.ly
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"In #cooking, you can freestyle, if you like, a lot more..In #baking, and especially as a #PastryChef, you need to be very, very precise. Certain recipes will fail horribly if you’re out by 1/8th of a teaspoon of 1 ingredient.": buff.ly/T8SqfF2 Featuring: sarahfrisonhc #ChronicIllness #pastry #chef

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"A big #challenge that I have with the popular #midlife #narrative is that it’s deficit-only..We only hear about what we may potentially lose in this phase of life &..less abt what is available for us to gain or maintain.": buff.ly/OIWZPdV via @greatergoodedu.bsky.social #MidlifeCrisis #mindset

Why Midlife Might Actually Be AwesomeFrom stronger relationships to deeper purpose, research finds that midlife may come with unexpected gains.buff.ly
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"I’ve had people tell me they finally asked their own #doctor a Q they’d been sitting on for yrs after hearing me talk abt mine..it’s because so few of us get to see this stuff talked about plainly instead of euphemistically.": buff.ly/JynBhsJ by @thethrivingspoonie.com #ChronicIllness #advocacy

How Self-Advocacy Transformed My Life with Chronic IllnessFor years I hinted instead of asking, apologized for taking up space, and waited to feel confident before I'd speak up for myself. None of that worked. Here's what actually changed how I advocate for…buff.ly
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"Hospital stays can be very #stressful, #boring, & sometimes unpredictable, but you can eliminate some of that stress by preparing ahead of time. When you go to the #hospital, the things u will need will vary, & it depends on why u are there.": buff.ly/GHr8Psd by sarahlynn358 #ChronicPain #surgery

What Is In My Hospital Bag?When you are disabled or chronically ill, sometimes you have to go to the doctor or hospital more often than non-disabled people because sometimes you have health issues that require a surgery or t…buff.ly
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"We praise it like a #virtue. We stitch it into #wellness workshops & evaluation feedback. We hand it to struggling residents like a prescription. But in the world of #addiction, the world I also inhabit, #resilience is often the very thing that kills us.": buff.ly/2Bbj7hL via kevinmd #PatientCare

The danger of worshipping resilience in medicineMedicine treats resilience as a virtue, but the demand for it can be fatal. A physician in recovery on why real strength is knowing when to ask for help.kevinmd.com
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" #Indigestion often doesn’t have 1 cause — but is how your #body responds to a mix of habits, #FoodChoices & timing..If [ #digestion ] process gets disrupted or your #DigestiveSystem is under more strain than usual, u may feel discomfort.": buff.ly/UclS0Vr via @upmc #HealthyEating #ChronicPain

How to Treat Indigestion | UPMC HealthBeatTake a closer look at how indigestion works, and symptoms to look out for, so you can better understand what’s happening in your body.buff.ly
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[New] "It's so true that the older you get, the faster time flies by. I have also been on bed rest after a minor #surgery, so I guess that doesnt help! Anyway, if you live with a #ChronicIIllness or #disability, come check out the #August #WritingPrompts.": buff.ly/fIwTy9g #community #disabled

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"My #son brings me a pillow for my back, and then climbs into my lap. I am cushioned and I am cushion. This is how #care happens.": buff.ly/N7dooYF via @Longreads.com @christytending.bsky.social #motherhood #disability #DisabledPeople #family #ChronicPain

Things That Able Me - LongreadsChristy Tending | Longreads | February 2, 2023 | 14 minutes (3,768 words) There are things that able me. A chair. One person speaking to me at a time. Shoes that are not cute, but spare me nerve…buff.ly
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“ #ChronicPain has rerouted my #life more times than I can count. It has taken me down roads I never meant to travel..Not quite the way I’d planned. A lot bumpier. Requiring a slower pace. And focused attention.": buff.ly/p8wyL1w by sunbeamacres #ChronicIllness #LifeJourney #hope #SelfWorth

The Messy Middle: Finding Hope When Life Refuses to Be TidyI am in the messy middle of my life. Not the beginning, when everything still feels like clay. Wet, moldable, brimming with possibility. And not the end, when threads have been tied off and stories…buff.ly
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"After 4 hours, it was time. I got up and started to pack my #HospitalBag methodically, calmly. A well rehearsed routine on auto pilot, no need for #emergency drills.": buff.ly/9sMAPtv #ChronicIllness #ChronicPain #CPP #OvarianCystRupture #WomensHealth #spoonie

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“And #life happens to us without our permission, so to speak. None of us chose to be #alive. It simply happens to us. It happened to my cat, Simon too! One can #experience without #thinking, but one cannot #think without experiencing”: buff.ly/CieTEMB from @aeon.co #philosophy #humanity #body

Why you need your whole body – from head to toes – to think | Aeon EssaysContemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thoughtbuff.ly
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“I happen to be an open book. If you genuinely want to learn, I’ll answer. Just be warned: if you ask something personal, you may receive far more detail than you bargained for.”: buff.ly/2TSBpY3 by @mustlovedon.bsky.social #disability #ChronicIllness #InvisibleIllness #communicate #HealthEducation

All Of MeCartoon CJ sits in a dimly lit room infront of a desk, watching a lady sign via a laptop screen. Living with multiple illnesses, disabilities, and daily challenges has taught me a great deal—not ju…buff.ly
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"Once I got #sick, I was in & out of #hospitals ..As my world narrowed, other people’s reactions blazed brighter – like headlights igniting a dark room. Everyone knew my business. & worse, I depended on them.": buff.ly/x6kkaDY via @psyche.co #NEisVoid #cancer #ChronicPain #support #caregiving

I had cancer. Did I need all the miserable comforters too? | Psyche Turning PointsSick in a London hospital, I understood the Book of Job and his rage at all the miserable comfortersbuff.ly
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"Write out your general daily #routine. What do you enjoy and what don’t you enjoy?" — Get all the #mindfulness #journaling prompts for August in the post, with a theme of "#Pacing & #SelfCare" this month! buff.ly/MKeSCqX #ChronicPain #disability #WritingCommunity

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"The sting of needing #support softens when that support feels chosen rather than imposed..Because if #disability is unavoidable, I might as well accessorise.": buff.ly/OkoWycF by @serenebutterfly.bsky.social #spoonie #DisabledAndCute #ChronicIllness #disabled #MobilityAids #WalkingCane

Dynamic Disability: The Truth About Life in an Unpredictable Body –A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.www.brainlesionandme.com
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