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"Should I do some googling? No, better to whip up a cantankerous op-ed instead"

Grateful to @putrinolab.bsky.social (and others) for the on-going Webinar, 'How To Manage and Treat Post-Exertional Malaise (#PEM)' YouTube link will follow 🙏 #LongCovid #MECFS

ME/CFS - with Long Covid - should now be treated by Governments and society as a common and highly debilitating disease. The neglect, scorn and gaslighting must stop.

Today is the 1-year anniversary of the #DecodeME genetics preprint. It was an emotional day for many including everyone in the team that delivered the project #pwME #MEcfs @actionforme.bsky.social institute-genetics-cancer.ed.ac.uk/sites/defaul...

Brilliant letter from Stuart Thompson to Jeremy Clarkson about his comments that benefit claimants should write weekly thank you letters to tax payers detailing how they spend their benefits each week.

Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest Screenshot from latest Science for ME weekly update #MEcfs #LongCovid

#LongCovid is not a ‘subject’ to dispute. It’s a health condition that changes people’s lives. Definitions can evolve & that’s not an excuse to dismiss the illness itself. Diagnostic criteria for diabetes have repeatedly changed over time but no one takes u seriously if you say diabetes in disputed!

I’m intrigued by the recent resurgence of the ‘Long Covid is not real’ nonsense we saw back in 20/21. The refusal to learn is one thing, but the dismissal of reality is another. Long Covid is too painful, too common & too present in many people’s lives to be denied. The story is hard to rewrite.

The Biopsychosocial Model by @longcovidadvoc.com www.longcovidadvoc.com/post/bps From Science for ME weekly update: A thorough & critical look at the origin of the biopsychosocial model & its devastating consequences. The article has an excellent visual summary of its key points #mecfs #longcovid

101: 03. The Biopsychosocial ModelTo clearly name the problem: The term is accepted in medicine as a common-sense position that on the surface makes a great deal of sense. Yet, there is often a hidden psychosomatic interpretation that...www.longcovidadvoc.com

Long COVID is "disputed" in the same sense that evolution is "disputed" - i.e. not disputed by anyone with any scientific credibility. Pretending otherwise just happens to be attractive to the Dunning-Kruger brigade whose negligence caused it by allowing COVID to get out of control.

1/3 NHS England’s ME/CFS e-Learning Modules FOI Results reveal lack of uptake In January 2026, and repeated in June, Lucibee [social media username], an advocate for people with ME/CFS submitted a Freedom of Information (FOI) request to NHS England

It’s Severe ME Awareness Week. Here are some highlights from the explainer video on severe and very severe #MECFS I made in 2021. Experts discuss the lack of medical care, swallowing difficulties and tube feeding often being delayed until it becomes life threatening.

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University of Liverpool researchers show lab made fibrinaloid microclots have classic amyloid staining. These hard to dissolve clots can form on cell debris and may impair small vessel blood flow in Long COVID. www.cambridge.org/core/journal...

Uncovering the hidden biology of fibrinaloid microclot complexes in complex, inflammatory diseases | QRB Discovery | Cambridge CoreUncovering the hidden biology of fibrinaloid microclot complexes in complex, inflammatory diseases - Volume 7www.cambridge.org

Much as I love the News Agents their discussion on Covid was ill-informed and misleading. christinapagel.substack.com/p/we-are-lea...

We are learning the wrong lesson from Covid school closuresA response to yesterday's News Agents podcast...christinapagel.substack.com

📣 New paper out on Long Covid and work from REACT Study. Based on over 45,000 participants: 🔷 4.3% had unresolved Long Covid 🔷 An additional 2.3% had resolved Long Covid 🔷 Participants with unresolved Long Covid had 38% lower odds of being in paid work, & 4x higher odds of having to change hours

"Covid has just ruined my life and the lives of so many other children" Samir, 16, has seen little improvement 5 years after developing #LongCovid. He is still disabled, housebound, and wheelchair-bound. The only medical help has been private because there was nothing on the NHS.

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At the time I raised concerns in TES, & to the DfE, on the data being used to justify it was safe for teachers, students and parents to keep schools open. Many children, staff and parents caught long covid because there was literally zero in schools in regard of protections for a long time....

In my latest for @thesicktimes.org I covered the recent Dysautonomia International conference, which was held just outside Houston. It was three days of learning about all of the latest in research and clinical care.

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick TimesThe 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.thesicktimes.org

“Physical inactivity cannot solely explain the lower exercise capacity and skeletal muscle adaptations in long COVID and ME/CFS patients” www.nature.com/articles/s41...

“Private equity now owns the plumbing of English general practice. The GP records of more than half the country sit on a system controlled by a firm whose business model is returns for investors, not care for patients, and the public found out after the fact.”

Alarm at NHS patient records being put under control of US private equity firmDoctors and MPs urge more scrutiny of £300m deal for company behind system used by most GPs in Englandwww.theguardian.com