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Публикация

Miles W. Griffis

"The idea that exercise is the best medicine for all people with POTS still lingers. As Davenport noted, “We need to interrogate who has the fear here. We can’t be afraid of not exercising.” @sweetsciencewriter.bsky.social's write up on the DI conference for TST 🫀 thesicktimes.org/2026/07/28/d...

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick TimesThe 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.thesicktimes.org
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Ответы

JustAnne

This is something I know well. Being gentle with yourself on rough days matters more than pushing through.

Miles W. Griffis

"Themes included the growing evidence that dysautonomia is an inflammatory and autoimmune condition; the role of mast cell dysfunction in driving symptoms; strategies for treating people who have both POTS & ME; and a new biobank initiative to facilitate research." thesicktimes.org/2026/07/28/d...

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick TimesThe 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.thesicktimes.org
Ответ для Miles W. Griffis
Katie

I'm in a crash right now. No spoons to read this. But does this explain why mcas can make PEM worse? Prev crash was literally my worst ever and mcas was very much acting up/ the variation. But I don't know why they would be linked, what that means.