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"The idea that exercise is the best medicine for all people with POTS still lingers. As Davenport noted, “We need to interrogate who has the fear here. We can’t be afraid of not exercising.” @sweetsciencewriter.bsky.social's write up on the DI conference for TST 🫀 thesicktimes.org/2026/07/28/d...

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick TimesThe 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.thesicktimes.org

"When healthy people become ill, they expect to call a doctor, receive treatment, and recover. When people with myalgic encephalomyelitis (ME) become sicker, they often rely on other sick people for care, in the absence of systemic support." thesicktimes.org/2026/07/20/a...

Abandoned by our governments, people with severe ME and Long COVID are supported by severely ill peers - The Sick TimesMari, a Black Canadian woman with severe myalgic encephalomyelitis (ME), is supported by fellow people with ME in the absence of institutional care.thesicktimes.org

""We’re interested in FcRn inhibitors as a treatment option for a subset of folks with Long COVID...” Putrino [said]." A great story on Vyvgart and Ampligen, and the challenges of study design for Long COVID, POTS, and ME by @rowanwalrath.bsky.social cen.acs.org/pharmaceutic...

Access to potential long COVID drugs dwindles as trials falterTwo sets of studies for COVID-driven conditions show the struggles of drug developmentcen.acs.org

A hot, humid day in the desert comes to an end. Thunderheads stacked around us all day but we never got the relief of rain. #monsoonszn

NEW: The ME/CFS Research Foundation recently announced €2.4 million in funding for 7 projects for ME and #LongCOVID. Research topics include "B-cell depletion, genetics, biomarkers for autoimmunity, immune dysregulation, & the stratification of children w/ ME." mecfs-research.org/en/news-rese...

ME/CFS Research Foundation investiert 2,4 Millionen Euro in neue Forschungsprojekte  - ME/CFS Research FoundationSeven new research projects, funded with a total of €2.4 million by the Foundation, are set to start their work this summer. The projects were selected from around 30 submissions under “Research Fundi...mecfs-research.org

🚨: People with Long COVID continue to be exploited by select groups of researchers. McMaster University is questioning the *proven consensus* that Long COVID is biological by funding a known scam/grift. The program is heavily denounced by experts.