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When people die and the media says they had “pre-existing conditions”… they’re pacifying the public. Anyone could die from Cyclosporiasis, but they want you to believe it can’t happen to you. It can only happen to the weak, the disabled, the elderly. The expendable people. Eugenics.

Two Deaths Linked to Cyclospora Outbreak in MichiganThe patients had “significant underlying health conditions” that may have contributed to their deaths, health officials said.www.nytimes.com

Emily is really living through the depths of chronic illness, please help if you can.

He considers himself the chief victim of the pandemic because he was called “fringe” in an email.

Stanford Prof. Jay Bhattacharya Responds to Being Called 'Fringe' in Collins, Fauci Emails | CLIPYouTube video by American Thought Leaders - The Epoch Timesyoutu.be

This thread is a delight. Dr. Tanner handed some dudes who thought their law school degrees made them slick their asses.

We will be ready to have a real discussion about Covid when we accept the fact that “the vulnerable will fall by the wayside,” said by Fauci, under Biden, was eugenicist policy.

My #DisabilityPrideMonth is not pride in being disabled. Being a disabled person is value neutral. I’d much rather not be disabled by this illness. It’s the worst thing that’s ever happened to me. But my #DisabilityPride is my pride in the Disablity Justice Community and THAT is worth celebrating.

Join us today at 12 PM ET US for a Research Roundtable on @amaticahealth.bsky.social's RNA Sequencing Research with Nick Boyd-Gibbins! Amatica has one of the largest patient-driven RNA datasets of #MECFS #pwME & #LongCovid patients Registration link below ⬇️ Recording to drop on our YouTube channel

Please join us Sat. July 25 at 12 pm ET US for a Community Meeting: "Clinicians with Patients: Clinical Management Focus on Crashes and PEM, PESE & PENE" with Drs @doc4care.bsky.social & Brayden Yellman discussing care issues for #MECFS & #LongCovid Register: us06web.zoom.us/webinar/regi...

1/ 🚨 Big news: @solveme.bsky.social has awarded @renegaderesearch.bsky.social a Catalyst Award to launch SIGNAL - a decentralized platform to test promising therapeutic devices for ME/CFS and Long COVID. Here's what it means for patients 🧵

The FDA said a sample of shredded iceberg lettuce supplied by ‌Taylor Farms that is not part of the current recall tested positive for the parasitic illness

FDA says sample of iceberg lettuce supplied by Taylor Farms tested positive for US parasite outbreakThe FDA on Saturday said a sample of shredded iceberg lettuce supplied by ‌Taylor Farms tested positive for a parasitic illness that has sickened thousands of people in the U.S.www.reuters.com

We're excited to host @amaticahealth.bsky.social for a Research Roundtable on July 23 at 12 pm ET! Amatica has one of the largest patient-driven RNA Sequencing datasets in #MECFS & #LongCOVID. Nick Boyd-Gibbins will share what the data is revealing. Register: us06web.zoom.us/webinar/regi...

Welcome! You are invited to join a webinar: Amatica's RNA Sequencing Research. After registering, you will receive a confirmation email about joining the webinar.Amatica Health joins Renegade Research for a roundtable on the biology of Long COVID and ME/CFS, and how large-scale RNA sequencing can advance research into these underserved conditions. Amatica is ...us06web.zoom.us

Please join us on Friday, July 31, 2026 at 12 pm ET US for a Clinician’s Roundtable webinar: “Part 2: Sleep Disorders and Breathing Mechanics” with Avram Gold, MD and Joe Borelli, MD on sleep and breathing issues in #MCFS and #LongCovid patients Register: us06web.zoom.us/webinar/regi... 🧵 1/7

Please join us today at 5 pm ET for a webinar we're hosting with @openmedf.bsky.social! Discuss PEM, PESE and PENE with @isabelrb.bsky.social, @tessfalor.bsky.social, @sunsopeningband.bsky.social, Danielle Meadows, Chris Armstrong Register: us02web.zoom.us/webinar/regi... #LongCovid #MECFS #pwME

Bernita Bowlding's brother: "They say that 'We love you, we got you,' but the reality is that this woman is homeless." The white supremacy in the frame and the homelessness outside it. A distinctly American story.

The Woman in the Photo Wanted to Be Alone. Instead, She Went Viral.America saw what it wanted to see on the face of its newest icon. And everyone saw it wrong.www.notus.org

You can also find more information on Scott's longform LinkedIn post on the matter here: www.linkedin.com/posts/scotth...

#meaction | Scott HugoI started a WIRED retraction campaign a month ago because I was appalled by how many people - already marginalized by chronic illness and disability - had been harmed and would continue to be harmed a...www.linkedin.com

Bravo to Scott Hugo!! 👏🏻👏🏻👏🏻 This looks like a lot of work and we need more advocates doing work like this!

If you haven't seen it yet, Scott Hugo has written a request for a formal ethics investigation into WIRED for its highly unusual reporting on #LongCOVID. Hosted on #MEAction; well worth a read: lnkd.in/gQz8GriC

We'll host a Research Roundtable on August 14 to help researchers learn from patients with complex, multi-system, chronic conditions! Applications are due July 24. Speakers will be notified by July 31. Caregivers welcome to apply. Apply: docs.google.com/forms/d/e/1F... #MECFS #LongCOVID #hEDS

"Patients to Researchers: Lived Experience Research Roundtable" ApplicationRenegade Research will be hosting a live Zoom webinar on August 14. 6-8 patients with ME/CFS, Long COVID, or related conditions will present 5 minute medical histories (such as diagnoses, onset, prog...docs.google.com

This week we're cohosting with @openmedf.bsky.social: Crashes & Post-Exertional Symptom Worsening (PEM/PESE/PENE) Topics include crashes vs worse post-exertional symptoms, different experiences & triggers, how we measure these July 15, 2026 at 5 pm ET US Register: us02web.zoom.us/webinar/regi...

Welcome! You are invited to join a webinar: Crashes & Post-Exertional Symptom Worsening (PEM/PESE/PENE). After registering, you will receive a confirmation email about joining the webinar.Open Medicine Foundation and Renegade Research are hosting a live session on July 15 at 5pm ET focused on crashes and post-exertional symptom worsening (PEM/PESE/PENE) in ME/CFS. The session will brin...us02web.zoom.us

More than half of Americans say they can't afford healthcare. For the 1st time the majority of Americans told Gallup healthcare has become unaffordable to them. Over the last year 3 million more people fell into being unable to afford access to quality care or pay for visits and prescriptions.

Fewer than half of Americans say they can afford healthcare: GallupIt's the lowest rate since Gallup began tracking it five years ago.abcnews.com