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That would NOT work for me, because caffeine makes my POTS so much worse. Like ER worse. I have heard some people say it helps theirs, though. But the vast majority of POTSies I know can’t have caffeine.

Noah

In a pinch, a can of Coke is good for sugar + sodium (if there aren’t a lot of better options available, it’s what I usually grab when I’m feeling dizzy). Most people don’t think “pop = good” but it’s cheap + easily available.

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Caffeine does terrible things to my poor little brain

I know caffeine does weird (and sometimes really bad) things to people, but for some reason it makes me sleepy, which is the opposite of its purpose I’m told…

Ответ для Is it 2027 yet?

I was only just diagnosed with POTS and my GP told me to drink caffeine after every meal 🥴. Slightly concerned now.

Praise be to my RAGING case of ADHD, I guess, because literally nothing impacts my heart rate in the way drs are always afraid of, despite the POTS. Like 500mg+ of caffeine (by accident! I didn't realize how much was in instant crystals!), on a day I took my concerta, the resting HR never went > 70.

i cut caffeine for like a year after getting diagnosed until i found out it’s one of the few things that *doesn’t* mess with my POTS, lol. it can be such a confusing disorder, so different for everyone!

Topo Chico and liquid iv? Or is that too acidic

But people are always shocked when they find out how much salt I can have

Ответ для Mara Wilson

oh so YOU are the person the salted lemonade is for (there's this place here that serves those and its like ocean salinity!)

Ответ для Mara Wilson

My gf has POTS, and can’t seem to convince her health nut mother that no, I actually do need all of this salt, tyvm.

Ответ для Mara Wilson

The look on my face when my doctor said "You could add more salt to your diet?" after years of assiduously avoiding it probably could have lit up an arena.

Ответ для Mara Wilson

Salt is great, caffeine is awesome as long as I take my beta blocker

Ответ для Mara Wilson

I inherited whatever bizarre trait my mother has that makes me like salty things to the extent that there basically no upper limit to my salt tolerance, and it's definitely not a sodium deficiency. Bodies are weird.

Ответ для Mara Wilson

I don’t have POTS, but when my doc told me to add more salt to my diet I thought I was hearing things (I swear I’m turning myself into Lot’s Wife). 😂

Ответ для Mara Wilson

@ltrip.altgov.info 🧂

Ответ для Mara Wilson

I remembered you mentioning, either on Bluesky or TwiXXer that you have a dangerously LOW sodium count and you frequently eat salty snacks to make up for it

Ответ для Mara Wilson

See I kind of lucked out bc my ADHD appears to overrule my salty sitdowns on caffeine (the only time I’ve felt wired is the time I didn’t sleep finishing an essay then went to a day of classes & drank 7 Red Bulls, it does nothing to my POTS) so I’m here downing salt tablets with my coffee lol

Ответ для Mara Wilson

Even my GP was surprised that I drink 4-5 litres of water every day, but it's how much my body needs or my heart rate gets angry at me.

Ответ для Mara Wilson

This is why you always salt the pasta water. If the pasta water ain't bringer than the sea, it ain't for me.

Is Sprite okay since it doesn't have caffeine?

I know several POTsies who say caffeine is fine/helpful for them All of them have ADHD Considering how differently ADHD brains tend to react to caffeine, I suspect these things are related 😅

Ответ для Dianna Gunn Does (Fictional) Murders 🇨🇦

Caffeine is the only drug I can do. Which reminds me…

Ответ для Dianna Gunn Does (Fictional) Murders 🇨🇦

I also have ADHD and caffeine wrecks me 🤷🏻‍♀️

I can drink coffee or tea fine. Soda is ok in small amounts, but energy drinks are awful for me. I stopped trying to drink a bit of them for my fatigue a few years ago bc it was worth it.

Ah, good point! Caffeine has no effect on me/my POTS symptoms so I didn’t think of that.

She meets the Fonz one time and now she’s dropping Potsie’s! 😂

While i dont have pots i have dysautonomia and caffeine can either knock me out or help its weird how these issues act. Hopefully you dont have EDS i know its pretty common with POTS

"Hey hand me a hospital cola." "Looks normal to me, why's it called a Hospital Cola?" *Thud Glad the good hearted peeps was there for you buddy ✊♥️

I’m one of the POTSies who almost needs caffeine. Most mornings I feel horrid without it. Physically and mentally. But if I have too much it feels Very Bad. Like I feel poisoned.

My child needs salt (for medical reasons) and it is hilarious how many random containers of salt I have tucked into everything. If you open up a pocket sized container of anything I own? There’s a 50-50 chance it’s filled with salt.

I’m not pots specifically but other dysautonomia… my cardiologist was horrified that I gave up caffeine 😂 I think she was just thinking of how she would get through shifts