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People with long covid and ME are not deconditioned! Inactivity cannot explain lower exercise capacity and skeletal muscle adaptations in long covid and ME patients as their skeletal muscle characteristics differ from those of healthy individuals after bed rest. www.nature.com/articles/s41...

People with long covid have persistent reductions in pulmonary blood and airway volumes despite normal conventional imaging and pulmonary function tests. Subtle microvascular and small-airway abnormalities may contribute to ongoing respiratory symptoms. #Notlazyorcrazy www.mdpi.com/2076-3271/14...

Psychotherapy fails to reduce physical long covid symptoms. German researchers also show that childhood trauma doesn’t play a role. Nothing new for people like me but surely news for those who believe in central sensitisation and cognitive behavioural therapy. link.springer.com/article/10.1...

Efficacy of a psychotherapeutic group intervention for patients with Post-COVID-19 condition: a randomized controlled trial (PsyLoCo study) - BMC PsychologyBackground Persistent physical symptoms such as fatigue following SARS-CoV-2 infection are common and often accompanied by cognitive complaints. Alongside biological mechanisms, psychosocial processes...link.springer.com

News study from the Wüst team showing that recovery after exertion is disturbed in people with long covid and exertion intolerance, and that heart rate variability can help monitor and prevent post-exertional malaise. This reflects our lived experience. link.springer.com/article/10.1...

Wearable Heart Rate Variability Monitoring, Autonomic Dysfunction and Post-exertional Malaise in Long COVID: An Observational Study - Sports MedicineObjectives Patients with long coronavirus disease (COVID) experience disabling fatigue, autonomic dysfunction, reduced exercise capacity and post-exertional malaise (PEM). Heart rate variability (HRV)...link.springer.com

More than 6 years after the pandemic started, people with long covid and myalgic encephalomyelitis are still struggling to cope with their physical disabilities as well as the stigmatisation and psychologisation, while research, healthcare and support are inadequate. www.rts.ch/info/sante/2...

Six ans après la pandémie, que deviennent les malades du Covid long ?Le 19 février dernier, un jeune Autrichien de 22 ans, Samuel, fait appel au suicide assisté pour mettre fin à sa "souffrance inimaginable" causée par le Covid long. Plus de six ans après le début de l...www.rts.ch

People with long covid face major barriers to timely coordinated care. We urgently need stronger primary care competencies, to expand multidisciplinary services, and implement structured patient-centered pathways to improve outcomes and reduce long-term disability. www.mdpi.com/2227-9032/14...

If you want to understand what’s going wrong with long covid and myalgic encephalomyelitis, I urge you to read this article. This is the best I have read on the topic. It‘s not just a medical problem. Psychologisation of our disease is not the answer! ottokolbl.medium.com/me-cfs-long-...

Dismissed, Disbelieved, Damaged: The Cruel Treatment of Complex Chronic Illness PatientsChristina Koch, Otto Kolblottokolbl.medium.com

Today @longcovidch.bsky.social posted its position on the limited role of biopsychosocial and neuroplastic approaches in the management of long covid. On the whole these models do more harm than good. Recovery narratives and testimonials are no scientific evidence. long-covid-info.ch/news/positio...

Positionierung zu biopsychosozialen und neuroplastischen Modellen bei Long Covid - Long Covid Schweizlong-covid-info.ch

Happy that one Swiss newspaper wrote a critical article about body-mind approaches, which are being pushed in Switzerland. www.woz.ch/2621/long-co...

Long Covid und ME/CFS: Heilung in drei Tagen?Während es in der Schweiz noch immer an adäquater medizinischer Versorgung bei Long Covid und ME/CFS fehlt, boomen fragwürdige Methoden.www.woz.ch

Lea Rahels Maturarbeit über myalgische Enzephalomyelitis ist im Finale von Jugend forscht ! Das Video dient dazu, das Thema visuell zu verbreiten und mehr Aufmerksamkeit darauf zu lenken. Genau, das was wir für die Krankheit ME/CFS brauchen! Das Video ist jetzt auf YouTube: lnkd.in/d9aqht9z

Fascinating paper from Manuel Ruiz Pablos Bruno Paiva, showing that the survivor genes of our ancestors may be responsible for our overactive immune systems getting out of whack and the host developing autoimmune diseases such as #longcovid #mecfs #myalgicencephalomyelitis #postvac.

A diagnosis of three broken ribs is a doddle. 10 minutes of ultrasound. No discussion, no gaslighting and no doubt. Empathy and understanding. Compare that to a typical journey of a person with medically unexplained symptoms such as manifested with long covid and ME/CFS.

Presenting our poster with recommendations in patient involvement at the 48th IHF World Hospital Congress in Geneva. The poster is about the unimedsuisse project with all university hospitals. We probably still have way to go.

Five years ago we started our group on long covid which was the foundation for @longcovidch.bsky.social. I would not change a thing looking back. We have come a long way but it has taken a toll.

The motion for a Swiss Strategy for postinfectious conditions was approved! We , the patient organisations for long covid and myalgic encephalomyelitis thank all who made this possible! What a day!

I’m having fun with this covid test… Can you spot misinformation? seanmullen.com/covidcompete...

Kurz und knapp um was es bei Long Covid geht und wo die Herausforderungen sind für Betroffene mit postinfektiösen Erkrankungen. Danke für die Berichterstattung! www.blick.ch/life/ratgebe...

Long Covid – ein finanzielles Desaster für BetroffeneWie die Zürcher Musikerin leidet auch Chantal Britt an der Krankheit. Die Präsidentin von Long Covid Schweiz erklärt Symptome, Diagnose und Folgen. Und spricht im Interview Klartext.www.blick.ch

The commission of the upper house unanimously recommended to approve the motion for a national strategy for postinfectious conditions. The strategy would provide a basis to improve healthcare, research and social security. @longcovidch.bsky.social long-covid-info.ch/news/5679/

SGK Kommission des Ständerates beantragt einstimmig die Nationale Strategie anzunehmen - Long Covid SchweizDie Kommission für soziale Sicherheit und Gesundheit des Ständerates (SGK-S) beantragt einstimmig, die Motion für eine „Nationale Strategie zur Verbesserung der gesundheitlichen Situation von Menschen...long-covid-info.ch

In der Schweiz leben rund eine halbe Million Menschen mit Long Covid und ME. Doch sie kämpfen nicht nur gegen eine unheilbare Krankheit – sondern auch gegen Stigma, Fehldiagnosen und lebensbedrohliche Behandlungen. daslamm.ch/chronisch-kr...

Chronisch krank und permanent angezweifeltIn der Schweiz leben rund eine halbe Million Menschen mit Long Covid und ME. Doch sie kämpfen nicht nur gegen eine unheilbare Krankheit – sondern auch gegen Stigma, Fehldiagnosen und lebensbedrohliche...daslamm.ch

PET scan and EEG of long covid show hypometabolism in the brain, which basically is the proof fir our cognitive dysfunction! The confirmation of what we have been experiencing for over five years. www.nature.com/articles/s41...

Mapping brain changes in post-COVID-19 cognitive decline via FDG PET hypometabolism and EEG slowing - Scientific ReportsScientific Reports - Mapping brain changes in post-COVID-19 cognitive decline via FDG PET hypometabolism and EEG slowingwww.nature.com