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Carrie Marshall - MySeveralWorlds.com

Профиль Vively

✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS 🦋 MySeveralWorlds.com 👩‍🦼 #DisabilityAdvocate 🤝 Team Fibro & Spondylitis 🎨 DISABLED ARTIST 🌴 https://linktr.ee/myseveralworlds

TRAUMA SAYS: "I shouldn't ask for help. I'll be too much." HEALING SAYS: "It's human to need others. Receiving support doesn't make me a burden. It makes me connected. Credit @KAYATOASTFORTHESOUL.SG #CPTSD #MedicalTrauma #MySeveralWorlds #ISupportYou #Trauma

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"Many disabled people are trapped in abusive relationships because of our social support systems. They force them to be financially dependent on those who cause harm. Reliant on abusers! We need better safety nets. @broadwaybabyto.bsky.social #MySeveralWorlds #DisabilityPrideMonth #DomesticAbuse

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What doctors wish patients knew about menopause “When you have a decrease in estrogen, you can have hot flashes, night sweats, anxiety, other emotional symptoms, insomnia, changes in your sex drive, & a host of symptoms. It's individual to the patient." 🔗 www.ama-assn.org/delivering-c...

What doctors want patients to know about menopauseMenopause is often accompanied by discomfort, though symptom severity does vary. Three ob-gyns share how to navigate this transformative period.www.ama-assn.org
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"Skin-related manifestations are common & may be the 1st signs of #APS. 40% of APS pts who have #cutaneous manifestations go on to develop multisystemic #thrombotic events which underscores the need to be extra vigilant" 🔗 buff.ly/XofExpO @achronicvoice.com #AntiphospholipidSyndrome

Client Challengebuff.ly
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But their disability didn't stop them! Yes it did. It stopped them, changed them, & made them into their magnificent Disabled selves. And thank goodness. The world needs people who understand what it means to accept, to adapt & live differently. @PacingPixie #DisabilityPrideMonth #MySeveralWorlds

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#Inflammation & #BloodClots "Diseases that cause chronic inflammation can lead to damage to the clotting process which can block blood flow in the veins. Common inflammatory diseases include Lupus Cancer Cystic fibrosis Asthma Psoriasis MS Diabetes Infection IBD" 🔗 thrombosis.org/2024/10/infl...

thrombosis.org
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I got heart palpitations every 3-4 days - I had many trips to ER. It isn’t dangerous within normal range, but I was unable to pay attention to anything else. After every rhythm reset I felt fatigue wash over me. I stopped working full-time. @achronicvoice.com 🔗 www.achronicvoice.com/2018/10/04/h...

What's it Like to Live with a Heart Rhythm Disorder?I live with PSVT — a heart rhythm disorder/arrhythmia. Read about my personal experiences living with this heart condition, and get tips to cope.www.achronicvoice.com
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"Ableists act like disabled people owe them. Spoiler: we don't owe them a single thing. We don't owe you our medical files. We don't owe you our diagnoses. We don't owe you a justification for support. We don't owe you our trauma as "proof." @DRDisability #DisabilityPrideMonth #MySeveralWorlds

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Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA. 🔗 buff.ly/3CISx4v #AnkylosingSpondylitis #nrAxSpA @asintfed.bsky.social told @gohealio.bsky.social

Name changes for Sjögren’s, axial spondyloarthritis ‘a big deal’ for researchers, patients“Ankylosing spondylitis”? “Sjögren’s syndrome”? These terms may soon take on an antiquated feel not unlike “shell shock” or “consumption,” as both...buff.ly
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"I can talk about my disability if I want. You talked about your day, now we're talking about my day. That's what's in my day. So what's your problem?" Credit: Tinu Abayomi-Paul RIP 🤍 - You were always kind to me. #DisabilityPrideMonth #DisabilityInclusion #MySeveralWorlds #DisabilityAwareness

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@AChronicVoice.com The Surprising Thing About Chronic Pain buff.ly/2Lvfo5n I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally.

Sometimes, Physical Pain Isn’t the Worst Part About Chronic IllnessWhen we think of pain, physical pain often comes to mind first. But sometimes, chronic pain isn't the worst part about chronic illness.buff.ly
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"Silence can be incredibly hurtful’: How to talk to someone about their #ChronicIllness While it may feel impolite to ask after someone’s ill-health, for those living with chronic conditions never being asked can feel ruder still." 🔗 www.theguardian.com/lifeandstyle...

‘Silence can be incredibly hurtful’: How to talk to someone about their chronic illnessWhile it may feel impolite to ask after someone’s ill-health, for those living with chronic conditions never being asked can feel ruder stillwww.theguardian.com
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"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly at My Brain Lesion and Me 🔗 Read it: www.brainlesionandme.com/reliving-hea... #Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

Reliving Heartbreak: Life With A Chronic Illness –Living with chronic illness is heartbreaking. Heartbreak that is repeated again and again as its worst moments are replayed over and over.www.brainlesionandme.com
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We rarely see #fibromyalgia in the news here: #Singapore "No two patients are the same. Clara likened her #pain to numbness crawling from her neck. Daisy struggles with #BrainFog. Jin Jie endures a deep-seated ache. Rina, a stabbing sensation. www.channelnewsasia.com/cna-insider/...

Invisible, incurable, constantly in pain: This is what living with fibromyalgia is likeImagine doctors insisting that you are fine, when your body is engulfed in pain. Four fibromyalgia patients tell CNA Insider about their struggles with this invisible illness and how they draw strengt...www.channelnewsasia.com
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Your chronically ill friend... isn't lazy isn't making excuses isn't flaky isn't avoiding you isn't attention-seeking isn't faking it isn't negative They're sick They aren't a burden. They're doing their best to carry one. Credit @spooniesaga #DisabilityPrideMonth #DisabilityAwareness

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Heck yeah! 💪 "Friendly reminder that you have zero control over how other people perceive you, so you might as well just be the person you want to be." Credit: @StorybrookeSoph / tiny buddha #LifeLessons #PersonalGrowth #DoWhatYouWantToDo #HatersGonnaHate 🤷‍♀️

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"If anyone doubts what life is like with #arthritis & wonders if meds work, you need to consider what your life is like WITHOUT them. Then you'll realize they make all the difference in being able to get out of bed or not doing anything." ~Carrie My Several Worlds #DisabilityPrideMonth

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"Disabled people & 'being controlling' "When you interact w. a disabled person who is being demanding - look again. Maybe all they are asking for is basics that will allow them to function, be part of society, & not get worse." 🔗 www.stickmancommunications.co.uk/post/disable... #DisabilityPrideMonth

Disabled people, self management, and 'being controlling'Disabled people are often seen as demanding and controlling - here I look at an example of why this might be, and what is really going on.www.stickmancommunications.co.uk
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‘Bouncing back’ is a myth – #resilience means integrating hard experiences into your life story, not ignoring them. Loss, #trauma and #illness often bring the same wrenching questions of identity and the painful uncertainty of what comes next. 🔗 theconversation.com/bouncing-bac...

‘Bouncing back’ is a myth – resilience means integrating hard experiences into your life story, not ignoring themPush through, stay strong, fight back – people often think of resilience as being tough and having grit. But research suggests it’s more about acknowledging the scars as you continue to move forward.theconversation.com
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