The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
This community continues to show up for each other. 💙 200 survey responses 💙 Nearly 60 donors Every voice and every gift helps shape the free educational resources we create for patients, caregivers, and clinicians. Today's the final day: https://bit.ly/4oKuFkY
Looking for community this August? 💙 Aug. 4: Support Group—Caretaking While Chronically Ill Aug. 12: Special Edition "Coffee" with a Clinician for #SevereMEAwareness Month Aug. 18: Support Group—Self-Compassion Amidst Disease Register: https://bit.ly/4npZ4Ud
More than 125 people have already shared what's missing. Patients and caregivers are asking for practical tools to help with self-advocacy, managing daily life, and understanding ME/CFS, Long COVID, fibromyalgia, and related conditions. Help shape what's next: https://bit.ly/4oKuFkY
Five organizations. One conversation. Join us Aug. 12 at 10 a.m. MDT for a special "Coffee" with a Clinician recognizing Severe ME/CFS Awareness Month. Featuring Bateman Horne Center, @openmedf.bsky.social , @solveme.bsky.social , @meactnet.bsky.social & WIMEL. Register: https://bit.ly/3JCHAFq
Reminder: Submissions are due Wednesday, Aug. 5. There's still time to share your story for our In Their Words series. A short reflection, audio, or video can help others better understand severe ME/CFS. 💙 Submit here: https://bit.ly/4ftJXq5 #SevereMEAwareness #MECFS
We're excited to see Dr. Lucinda Bateman joining this discussion on post-exertional malaise (PEM). If you're looking for practical strategies to better understand and manage PEM, we encourage you to register and join the conversation.
rthm_healthJoin Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, & moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise. Learn about the different types of PEM, how to navigate a crash, and interventions for reducing PEM. Sign up here: ow.ly/nAvg50ZtEb8
One of the hardest parts of chronic illness isn't just the diagnosis, it's having to explain it. Hear why Bateman Horne Center's mission is personal to our Executive Director, Tahlia Ruschioni. 💙 Help keep free patient & clinician resources available: bit.ly/4oKuFkY
💙 HELP THAT DOESN'T WAIT - Support: https://bit.ly/4oKuFkY When a child has Long COVID or ME/CFS, parents often become their child's biggest advocate. Our free pediatric resources help families understand these conditions and navigate school, healthcare, and home. https://bit.ly/4bHDerj
In Their Words This August, we're inviting people living with severe ME/CFS and caregivers to share their stories. Video, audio, written, or an image with a reflection, whatever feels possible. Submissions close Wednesday, August 5. Share your voice: https://bit.ly/4ftJXq5
Every Clinical Care Guide represents more than a finished product. It's built on evidence, shaped by patient experience, and created by a team dedicated to improving care. Help us keep this work going. 💙 https://bit.ly/4oKuFkY
Help that doesn't wait. Our partnership with @emergeaustralia.bsky.social offers free, self-paced modules on PEM, pacing, orthostatic intolerance, sleep, pain, and cognitive impairment (brain fog). Practical education you can access whenever you're ready. 🔗 https://bit.ly/4byA8pw
Reminder: BHC's Support Group meets tomorrow at 1:00 PM MDT. This month's discussion, Limits, Wants, Boundaries & Needs, explores honoring illness limits, setting healthy boundaries, and caring for yourself while living with chronic illness. Register: https://bit.ly/4npZ4Ud
Better care starts with better education. Project ECHO helps healthcare providers build practical skills in recognizing and managing ME/CFS, Long COVID, fibromyalgia, and related conditions. Project ECHO series: https://bit.ly/4fndpy0 @uofuhealth.bsky.social @openmedf.bsky.social
Many people living with ME/CFS & Long COVID become experts in their own health out of necessity. Explore free BHC tools that help patients prepare for appointments and support conversations with healthcare providers. 🔗 https://t.mtrbio.com/BHCPatientResources
YOUR VOICE HELPS SHAPE WHAT WE BUILD Your feedback helps us create educational resources that better serve this community. If you have a few minutes, we'd love to hear from you. 📋 https://bit.ly/4vIpmFg
Finding support shouldn't depend on your ZIP code. Explore BHC's free State-by-State Resource Directory to find healthcare, disability services, transportation, food assistance, mental health resources, state organizations, and more. 📍 https://bit.ly/3ZBBIAC
PEM is one of the hallmark symptoms of ME/CFS and affects many people living with Long COVID, yet it's still widely misunderstood. Explore free BHC resources on PEM, pacing, and recovery. 🔗 https://t.mtrbio.com/BHCPatientResources
WHAT PATIENTS NEED YOU TO KNOW On #ChronicDiseaseAwarenessDay, we're highlighting videos that help patients share their experiences and increase understanding of ME/CFS. https://t.mtrbio.com/BHCPatientResources #HelpThatDoesntWait
Education matters. Community matters too. Living with ME/CFS & Long COVID can be isolating. Explore BHC's Support Groups, Outreach Event Recaps & "Coffee" with a Clinician recordings, and join our mailing list for future events and resources. 📩 Sign up: https://bit.ly/3POhK4d #HelpThatDoesntWait
"Coffee" with a Clinician is live www.youtube.com/watch?v=xmKv...
"Coffee" with a Clinician: Chapter 5 - Sleep ChallengesYouTube video by Bateman Horne Centerwww.youtube.com