'We have to do it': Family of girl with ultra-rare disease prepares to test experimental treatment | CBC NewsHarper Tanton will be the fourth child in the world to participate in the clinical trial for kids who have CTNNB1 syndrome. She largely depends on a wheelchair and has developmental and speech delays.www.cbc.ca
'We have to do it': Family of girl with ultra-rare disease prepares to test experimental treatment | CBC NewsHarper Tanton will be the fourth child in the world to participate in the clinical trial for kids who have CTNNB1 syndrome. She largely depends on a wheelchair and has developmental and speech delays.www.cbc.ca