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UK can lead way on rare disease treatments “For many rare conditions, the issue is not a lack of scientific promise. Promising breakthroughs can be held back by limited investment, small patient populations, fragmented health & patient data,& regulatory systems” giftarticle.ft.com/giftarticle/...

Letter: UK can lead way on rare disease treatmentsFrom Sam Barrell, CEO of LifeArc, London WC1H, UKgiftarticle.ft.com
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“The UK is well placed to help address these challenges. It has world-leading life science institutions, deep clinical and research expertise, increasingly important health data infrastructure and a regulator showing ambition in how rare disease treatments can be developed and brought to patients.”